Who knew babies could get cancer?Felicity, Ava's mum
When her daughter Ava was eight weeks old, Felicity noticed her stomach was bloated. Everyone told her not to worry; it was probably just a reaction to formula - but a couple of weeks later, Ava started vomiting.
An ultrasound at Princess Margaret Hospital, Perth, showed a 10cm-long mass squashing Ava's bowel and stomach - which is what had been causing the vomiting.
I knew she was sick but I never, in my wildest nightmares, every thought it could be cancer.
Felicity thought they'd go in, remove the tumour and everything would be fine. It wasn't until they started moving Ava to the oncology ward that she realised the 'mass' was cancer.
The air sucked out of my lungs and my heart dropped like a stone. This couldn't be happening to my beautiful baby girl.
Ava's first biopsy revealed she had stage 4 neuroblastoma with secondary cancer in her bone marrow.
Neuroblastoma is the most common 'solid tumour' of early childhood, and is generally diagnosed when the disease is advanced. Around half of all children with neuroblastoma have aggressive tumours, and fewer than half of these patients survive, even after intensive treatment.
I asked the oncologist, 'Is Ava going to die?' She said, 'I can't tell you no, but I'll tell you when it's time to panic.'
Ava began her chemotherapy treatment and responded well. But because the cancer she had was so aggressive, the journey would take years of hospital visits, scans and tests.
The drugs were so toxic, Felicity and her husband Mark had to wear protective clothing. But as gruelling as the treatment was, it did its job - and after five months Ava's tumour had shrunk and her bone marrow was clear.
After 14 months and a few false starts, Ava was declared in remission in October 2011. She doesn't remember the chemotherapy, but she remembers all the scans and ultrasounds that happened afterwards.
I wept uncontrollably. The relief was immense.
Now seven, Ava loves swimming, dancing and Taylor Swift. She struggles at school and with her short-term memory, but wants to be a doctor or nurse when she grows up.
A team of our scientists has identified an experimental drug called CBL137, which when used in conjunction with chemotherapy has the potential to stop neuroblastoma tumour growth in its tracks.
Our laboratory tests tell us that CBL0137 is likely to be very effective against the most aggressive neuroblastomas, and that is very exciting.