People expect kids to be happy and healthy - but not all kids are.Danii, Kayne's mum
Bouncy, bright-eyed Kayne was a typically playful and curious toddler - until he started displaying worrying symptoms. Mum, Danii, took him to the local hospital time and time again, only to be told it was 'just reflux' - until one day, she refused to leave without an answer.
Shortly before he turned two, a normally happy and playful Kayne suddenly became unsteady on his feet. He would sit up and vomit in the morning and screamed in pain at night.
I knew something wasn't right - but I never thought it could be cancer.
A nightmare wait
A CT scan at the local hospital revealed a mass in Kayne's cerebellum and he was put straight into intensive care. Danii had to wait six agonising weeks for the pathology results.
Those six weeks were a living nightmare. Kayne had to learn to walk all over again.
Kayne was diagnosed with an Atypical Teratoid Rhabdoid Tumour (AT/RT) - a very rare type of brain cancer. He was rushed to Sydney Children's Hospital, Randwick for emergency surgery.
Brain tumours are the second-most common type of cancer to affect children and the most fatal of all childhood cancers, making them an immediate priority for Children’s Cancer Institute.
I was told that if Kayne's tumour had been left untreated, he would have only had two weeks to live.
Kayne suffered through a gruelling 18 months of chemotherapy and multiple brain surgeries. Danii stayed by his side for every heartbreaking moment of it all. Tragically, the very treatment that saved Kayne's life left him with permanent brain damage
Our researchers are working on ground-breaking nanomedicine research that could dramatically reduce the devastating side-effects that children like Kayne endure. Nanomedicine involves engineering tiny, chemically synthesised drugs delivery vehicles call nanoparticles, which can be packed with anti-cancer drugs which target the sick cells and leave the healthy cell unharmed
Enough is enough. We have to give these children a better quality of life
Kayne is now 7 years old but the treatment that saved his life, also changed it forever. Kayne can't chase after a soccer ball with his friends and he struggles to join in with their jokes. His treatment affected his balance and motor skills as well as his speech and hearing.
With 70% of survivors suffering lifelong side-effect, we know we need to find safer, better treatments for children like Kayne. But we can’t do it alone; we have the researchers, we have the technology and we have a passionate team determined to make this happen. All we need now, is your support