I want to drive awareness of the side-effects childhood cancer survivors have to deal with.Brodie-Lee, Felicity's mum
Brodie and Adam noticed their 10-month-old daughter Felicity had a lazy eye. By one week before her first birthday, both Felicity's eyes were lazy and flickering, and her perception had deteriorated so much she started crawling into furniture.
Go home and pack
The nurses at the local hospital took one look at Felicity and knew straight away her case was very serious. Her parents were told to go home and pack for a week, then they travelled by ambulance to Princess Margaret Hospital in Perth.
Mass on the brain
On Australia Day 2015, a scan at Princess Margaret Hospital revealed a mass on Felicity's brain that was putting pressure on her optic nerve. As soon as she found out the mass was on the brain, Brodie panicked.
I've studied psychology and I know how fragile the brain is. Any other area would have seemed more manageable.
One in a million
Felicity underwent an MRI, which revealed the mass had components of three different types of tumours - but doctors suspected it was a very rare brain tumour called craniopharyngioma.
We were given the option of doing a biopsy to determine what the tumour was, or to start surgery straightaway to remove it. We decided there was no point doing a biopsy without surgery.
Prior to surgery, Felicity had lost her vision completely and the pressure on her brain was making her aggressive and frustrated. She became the first baby in Western Australia to undergo surgery for this type of tumour.
Although this type of tumour itself is benign, the side-effects are life-threatening. Felicity has no vision in her left eye and is at risk of secondary health problems such as obesity and poor immunity.
The Zero Childhood Cancer program will offer a more personalised approach to cancer care for children by treating each child's cancer in the most targeted way possible, ultimately leading to better outcomes with less side-effects.
Felicity will be in paediatric rehabilitation for a long time and will need blood tests for the rest of her life.
The importance of research
Brodie and Adam are strong advocates for medical research and are helping us raise awareness of the debilitating side-effects often faced by childhood cancer survivors.