Felicity's Story

Felicity's story

I want to drive awareness of the side-effects childhood cancer survivors have to deal with.

Brodie-Lee, Felicity's mum Brodie-Lee, Felicity's mum

Brodie and Adam noticed their 10-month-old daughter Felicity had a lazy eye. By one week before her first birthday, both Felicity's eyes were lazy and flickering, and her perception had deteriorated so much she started crawling into furniture.

meet Felicity

Meet Felicity

Go home and pack

The nurses at the local hospital took one look at Felicity and knew straight away her case was very serious. Her parents were told to go home and pack for a week, then they travelled by ambulance to Princess Margaret Hospital in Perth.

Felicity Go home and pack

Mass on the brain

On Australia Day 2015, a scan at Princess Margaret Hospital revealed a mass on Felicity's brain that was putting pressure on her optic nerve. As soon as she found out the mass was on the brain, Brodie panicked.

I've studied psychology and I know how fragile the brain is. Any other area would have seemed more manageable.

Brodie-Lee, Felicity's mumBrodie-Lee, Felicity's mum

One in a million

Felicity underwent an MRI, which revealed the mass had components of three different types of tumours - but doctors suspected it was a very rare brain tumour called craniopharyngioma.

We were given the option of doing a biopsy to determine what the tumour was, or to start surgery straightaway to remove it. We decided there was no point doing a biopsy without surgery.

Brodie-Lee, Felicity's mumBrodie-Lee, Felicity's mum

Surgery

Prior to surgery, Felicity had lost her vision completely and the pressure on her brain was making her aggressive and frustrated. She became the first baby in Western Australia to undergo surgery for this type of tumour.

Felicity Surgery

Side-effects

Although this type of tumour itself is benign, the side-effects are life-threatening. Felicity has no vision in her left eye and is at risk of secondary health problems such as obesity and poor immunity.

Felicity Side-effects

The Zero Childhood Cancer program will offer a more personalised approach to cancer care for children by treating each child's cancer in the most targeted way possible, ultimately leading to better outcomes with less side-effects.

Felicity will be in paediatric rehabilitation for a long time and will need blood tests for the rest of her life.

Brodie-Lee, Felicity's mumBrodie-Lee, Felicity's mum

The importance of research

Brodie and Adam are strong advocates for medical research and are helping us raise awareness of the debilitating side-effects often faced by childhood cancer survivors.

Felicity The importance of research

There’s cancer and there’s childhood cancer. It has different causes and effects.

Help us save the lives of all children with cancer and eliminate their suffering

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If you’ve been touched by childhood cancer, we’d love to hear your story